and no more ultrasounds! CHOP gave us the all clear on November 23 that we do not have to go for any more bi-weekly ultrasounds. This was kind of a bittersweet moment for me. As much as I don't want anything to be wrong with our little baby, I loved seeing that miraculous face and beating heart appear on the screen every other week. I was kind of saddened to find out that we wouldn't be needing the ultrasounds any more. At the same time, I was relieved that things were going in the right direction and there would not be a need to monitor the growth any more, which is a very good thing!
The doctor was a different one from the first appointment at CHOP. At our first visit, we were informed that the mass was a BPS. At this visit, the doctor could not confirm if the mass was a BPS or a CCAM. He informed us that if the mass is a BPS, there is a slight chance that the mass will go away on its own between now and birth, or even shortly after delivery. That to me, was great news. My fear this whole time has been surgery on a tiny infant. If this could miraculously disappear, that would be the best news ever. On the other hand, if the mass is a CCAM, no matter how big or small the mass is, surgery is inevitable because the mass could turn malignant. Hearing that got my spirits down a little.
How could they be so sure at that first visit and tell us that it was a BPS? And now this doctor changes the diagnosis?
I am cautiously hopeful. As for now, all we can do is play the waiting game. When the baby is 5 weeks old, we will need to go in for her to have a CAT scan. They will inject dye to find out where the blood supply is coming from. This will determine if it is indeed a BPS or CCAM, and if surgery is needed.
Thanks again to all of you for your continued support, prayers, and positive thoughts.
